July 4, 2017

6 Steps to Post-Hospital Recovery - My "Happy to be Home" Routine

Hospitals, while necessary, are sad, disgusting, depressing facilities (for the most part). You know you have to be there, but the longer you are, the more you feel like you're not yourself, not a person.
That's why I have developed a "Happy to be Home" Routine, AKA "Back to Being A Person." It basically resets my system, making me feel as back to normal as I can, as quickly as possible. 
For example, this last stent of illness required two hospitalizations very close together. The first was 9 days, then only two sweet, wonderful days home, then back in the hospital 11 days. It was rough! I was SUPER HAPPY when I was finally able to go home. But, in really yucky post-hospital state.
The very next day after my discharge, I started my routine. I had a nice long, hot bubble bath. I shaved my legs (they had seriously gone Gorilla!), I washed my hair and left on a conditioning mask. Afterward, put on some really moisturizing lotion. My parched skin thanked me! Of course, just being discharged, that was all I could do the first day. Fortunately, this routine is of my invention, so I can do it however I want!
The following day, even though I knew I wasn't going anywhere, I took the time to carefully style my hair.  I painted my fingernails with a new nail polish I hadn't had a chance to use yet.  All the while, I listened to a new album of music that I had been waiting to hear.
Now there's also the practical side. I opened all our mail that had been coming in while we were gone. I made a list of all the follow ups I need to schedule, and made all my phone calls too. I hate having those things looming over my head, don't you?
Later that night, I helped my Mom cook dinner, and we all ate together as a family, and watched a Movie together.
All in all, it's been a good start to The "Happy to be Home" Routine, AKA "Back to Being A Person." I'm almost 100% back to feeling like Mia again.
So here's My List of things to do and accomplish when you get home from the hospital to help you recovery, and feel like you again in no time!

1. Wash the Hospital Off
    
    Whether it's a shower, bath, or whatever your favorite bubble time routine is - do it! Use your favorite shampoo and conditioner, yummy body wash, and don't feel bad to linger.

2. Look Like Yourself Again
    
    Coming out of the hospital, especially after a long stay, can change a lot of things, especially if you had to neglect them due to severe illness or surgery. Doing things to be myself again has always helped me feel more cheerful. Try fixing up your hair, putting on make up, or even dressing up! You don't necessarily have to be going somewhere - this is just for you, to feel like you!

3. Eat!
    
    Hospital food, although it's come a long way, is still overcooked, under salted, and sad. Now, if you're anything like me, I get stuck in a hospital-food-rut and I end up eating the same thing every single day. So, one of the first things that I do when I get home is to eat something that I really like. It gets the appetite back, and it makes you feel wonderful to know you've had a homemade treat. So, eat up!

4. Do Something Practical
    
    While not the most fun thing in the world, taking care of one or two of the more domestic things that you need to get done will help you to feel like you're getting something accomplished after being in the hospital for so long. Make a master to-do list, do a "brain dump", or simply open the mail. Why not go ahead and schedule your follow-up appointments? Your could also have someone help you to wash the clothes and blankets you had with you in the hospital. If you're anything like me though, just don't go overboard, because you don't want to overwhelm yourself when you've just gotten home!

5. Do Something Creative
    
    Doing something creative can have a stimulating and soothing effect on a person, all at the same time. I feel like this is an extremely important step to my routine. When I'm in the hospital, I often bring things to do with me, but I don't end up actually doing any of them due to feeling bad. (Besides, hospitals aren't exactly stimulating placesfor artistic creations.) However, right after getting home from the hospital, I feel like doing something creative really gets the inside out and gets me ready for normal life. This particular time, I chose to paint my nails because I had gotten a brand new color of nail polish that I had not used. I listened to music. I also made my world famous roasted brussel sprouts for our family dinner. But really it can be anything that you personally enjoy - painting a new picture, coloring in a coloring book, starting a new crochet project, or even cooking cooking a new recipe. If your stumped, try looking at your interests on Pinterest! They have thousands ideas, and it should really get your mind going.

6. Phone a Friend
 
    Being in the hospital is an unusual experience. You feel like life is moving very slowly, but in actuality, it's moving quickly all around you. People's lives are very busy. There is a tendency to lose touch with friends and also family members while there. So when getting out of the hospital, it's very important to re-establish those connections. YOU NEED SUPPORT! Call or text a friend or two that you haven't heard from in awhile and that would be encouraging to you. Why not be proactive and invite some friends to your house to see you? Being with those that really care will make you feel like you're at home again. In addition, encouraging words from those who really know you at heart can do a world of good for your recovery as well.


Now you know the 6 major steps of my "Happy to be Home" Routine. I hope the next time you're discharged, they will help you in your recovery, as they have helped me!

February 27, 2017

Mountainous Adventures


I have a saying in life  that I have  adjusted to social media  recently  called "mountainous adventures.". I like to use it to explain the wonderful, cool, or amazing things that I find myself doing every single day I have had since my lung transplant. Why do I bring this out so often?

I have found that a lot of transplant patients find pressure on themselves after their transplant to meet some kind of invisible standard. Specifically, an invisible standard of Awesomeness that they set upon themselves in order to be worthy of the transplant that they have received. It seems to me that this is of some kind of rite of passage to know and be comfortable with oneself after one's transplant. It's definitely a process of getting to know oneself again!  It takes some people longer than others to reach this point.



However, for me personally, I have found that to be worthy of my gift I don't have to climb any kind of mountains, run marathons, or invent some amazing product or cure. I don't have to make my mark and become famous in the world for some grand gesture. I simply have to be me - living my life in a way that shows appreciation and gratefulness for what I have received. In doing so, I can also bring awareness for the others that are still waiting to receive that gift. 

And along the way, I find the adventure in everyday life.

Yesterday, my niece and nephew discovered an actual mountain for me to climb! It was in the shape of a tube slide at the park. They wanted so badly for me to go in there with them! I wasn't entirely sure at first, but eventually I followed them inside that red hole to climb it from the bottom to the top! In the video I was taking on my phone you can hear I was completely out of breath -  this time, thought, it was not from a terrible end-stage lung disease, but from hilarious laughter! Pure fun and joy! It was a great moment, a great day. A Day to Remember. 




And that to me is living worthy of the gift that I have received. Living with joy, laughter, purpose, appreciation, gratefulness, love.

#mountainousadventures

Every single day. :)










Aunt Mia, Uncle Leland, Biscuit and Smoochie

Dear Fear

Dear Fear:

This is probably going to come as a shock but I'm cutting you off. I'm done with you. 

And guess what? It's not me - It's totally you!

I know you think we've got a rock solid relationship, built on time and shared experiences.  That's a nice thought, Fear, but it's false reasoning on both our parts. It's time to break free.

I know you've grown to be comfortable with me but I've never been comfortable with you. 

You're always there, getting in my way, annoying me, talking over me, whispering in my ear, and squandering my dreams. 

And today's the day we have The Talk. 

I am ending our relationship. 

You see, Fear, the thing is, you've become boring.  You and I, we've been together too long, I think. Remember how you used to come up with a lot of new and absurd things for me to be afraid of? But now its pretty much become predictable.  Some old thing, over and over. You know what you are Fear?  Boring, redundant, useless, and completely futile! 

I've made a decision. You are no longer going to be a part of my life. I'm not going to let you get in the way of what I want anymore.

Don't come around. Don't call me. Don't text. I'm even going to block you on social media - so don't try to internet stalk me either. 

It's over. It's so over. 

I cant have you impeding me anymore.  You've always been there, right in the way, slapping my hand from grabbing what I want, right when its in my reach.  Well I'm here to tell you, Mister, that I'm through with all that.  Your time is done.  Finished.  

And mine is about to begin.